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The world has lost a beautiful, brave soul.
Brooke Ebya TikTok A star known for sharing strength, humor and resilience even in the face of ALS, has died at 37.
ALS Network shared the news on their website, “mourning the passing of Brooke Eby, an amazing advocate, storyteller, community builder, and friend whose honesty, humor and determination changed the way many people understood ALS.”
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Their statement continued:
“Diagnosed with ALS at just 33 years old, Brooke made the very personal decision to share her experience publicly. She did so in a way that was uniquely her own – honest, vulnerable, funny, irreverent and very human.”
Millions came to know Brooke through her social media presence, where she offered an unfiltered window into living with ALS. She could explain a devastating truth, challenge misconceptions, and make people laugh, sometimes all in the same post.
Through that story, Brooke helped bring ALS to people who didn’t know much about the disease before. She turned awareness into understanding and understanding into action. But some of Brooke’s most lasting impact occurred in the community she created for others living with ALS.
Brooke founded ALSTogether, an online Slack community built around a simple but powerful idea: people navigating ALS should have a place to find others who understand what they’re going through.”
Sherry Raypresident and CEO of the ALS Network, remembers Brooke as someone who “changed the way people see ALS, but she also changed the way people living with ALS find and support each other.”
Read the full ALS Network statement here.
Brooke, who has the TikTok handle @limbbroozkit, shared her diagnosis story years ago after experiencing symptoms at 29. Watch below:
@limbroozkit My diagnosis story #grwm #diagnosis #terminalillness #als
♬ original sound – Brooke Eby
Even as her condition progressed, she never lost her spirit. These photos were posted just two weeks ago:
Her impact will live on and touch the lives of those affected by ALS forever.
May she rest in peace.
Click HERE to learn more about ALS and ways to support.
[Image via Brooke Eby/TikTok.]
